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Self-care advice makes me want to scream

“Take a bubble bath!” “Do yoga!” “Journal about gratitude!”

I’m caring for my husband with early-onset Parkinson’s, working full time, and trying to keep my 12-year-old’s life normal. When exactly am I supposed to take a bubble bath?

What does REAL self-care look like when you’re in the trenches?

4 thoughts on “Self-care advice makes me want to scream”

  1. Lisa_M_caregiver

    THANK YOU. Real self care for me is: eating an actual meal instead of picking at leftovers, going to bed 30 min earlier even if the dishes aren’t done, and saying no to one thing per week.

  2. SleeplessInSeattle

    the best self care advice i got was from a caregiver support group: self care isnt an event, its a series of tiny decisions throughout the day. drinking water instead of your 4th coffee. sitting down while you eat.

  3. For me real self care was accepting help. Which is the hardest thing I’ve ever done. Letting my neighbor pick up my kid from school.

  4. BurnoutRecovery_Tom

    Early onset Parkinson’s caregiver here too. My husband is 48. The loneliness of this specific situation is crushing. DM me if you want to talk — I get it.

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